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2/6 - My Story / History & All Symptoms Of Ankylosing Spondylitis

13, July, 2016
https://theonlywayproductions.blogspot.co.uk/
The Beginning Of My Life Living With Ankylosing Spondylitis.

Aged 18, I was a healthy, happy, confident, strong, outgoing young man. I was invincible, indestructible and nothing could phase me ... until I started getting pain on my lower back and buttocks.






Two years have now passed and the doctors could find nothing wrong with me even as the A.S  had progressed to my upper back. After many X-Rays, Ultra sound scan and hospital visits I was finally diagnosed with Ankylosing Spondylitis (A.S). After researching this disease I found that over the last 2 years living with A.S,  I should have kept moving and exercising, and not staying in bed crippled with pain as I was doing, or being afraid to exercise my back thinking I would make it worse. I thought I needed to rest, take it easy to make it better. How wrong was I.

Since being diagnosed with A.S, it's spread from the back and buttocks to the whole body in this order. Left hips (joint). Waste. Right hip. Chest. Neck. Right shoulder (joint, muscle, bone). Right upper leg (muscle & ligaments). Collar Bones. Left shoulder (joint & muscle). Pelvic bones. Rib cage. Left upper leg (muscle & ligaments). Shoulder blades. Right forearm (muscle & bone). Right elbow. Left forearm. Right lower leg (bone). Left lower leg (bone). Left elbow. Left & right wrists. Both feet. My hands, basically, my whole body was now infected with the disease except from my head and tummy.

Other symptoms included swollen left ankle and painful and bloodshot right eye. When laying down I would get about 4 spasms (body violently jerking) each night which jolted the body like an electric shock and  excruciating. In the wrong position coughing, sneezing and laughing was torturous.(I'm sure my neighbors heard me!) My bones, joints, muscles and ligaments all over was painful to the slightest touch. Standing and sitting down for too long caused intense pain and stiffness. Trying to get moving after sitting for too long was excruciating. I was, and still am fearful of sitting anywhere for too long especially on very comfortable sofas or armchairs. A firmer, "L shaped" chair is ideal. A swivel chair is much better for keeping moving. Standing and moving is even better..

Everything was planned around disabilities. When unable to reach too high or too low any more I'd have everything moved to height level. Plug sockets extended to height level. I moved home due this disability three times, and had to adapt to every new place. I changed my low dining table and chairs for high ones. The places I shopped had to revolve around the ones which were closest to the bus stops for both journeys. I could only buy so much because I could only carry so much.

Life was not just painful, It was embarrassing struggling to get around, and doing basic tasks like opening a food jar or packet. Dressing and undressing, washing the face and hair and shaving was very painful. Going up the stairs one at a time with my right leg with the usual "Stannah stair lift" comments. 

The worst part was trying to explain to people what I could and couldn't do, and what exactly Ankylosing Spondylitis is as hardly anyone has heard of it, and I could never, ever fully explain its relentless and excruciating, teeth clenching, face contorting symptoms. I even started telling people a made up word, "Rigamore-musculer-arthritic-itis" hoping this would explain what my problem was. 

I could fill the yellow pages about how A.S affected me and destroyed many years of my life.  

I was embarrassed to been seen. I could see strangers wondering what was wrong with me as I slowly shuffled limping along afraid of tripping over. People thought I looked angry all the time but I was never angry. No-one could understand this invisible pain. I'm sure they thought I had  mental health problems. Even if I tried to explain A.S to myself, knowing how it felt, I could not believe or conceive it possible.

 The only two positives - I can really relate to people with physical disabilities much more, and when you deteriorate physically financially and everything falls apart, you know who your real friends are.

The medication, advice & treatment I was getting from the medical Doctors. In the beginning I was taking paracetamols,  distalgesics and DF118 pills. Next were  nonsteroididal anti inflammatory  drugs (NSAIDS). Codeine. Then as the pain progressed, so did the drug strength. which later progressed to morphine pills, crutches and eventually steroid (cortisone) injections which I learned can eventually weaken the tendons and soften cartilage when injected into a joint. I learned that those who received cortisone injections will have a much lower rate of recovery than those who underwent physical therapy. Basically, steroids destroy the body. Over the last ten years, my doctors and rheumatologist's have all persuaded me to take Embrel Anti TNF injections. I have always refused thanking them kindly for their offer!

Health advisers never told me about Glucosamine chondroitin Gelatine and Collagen or other specific nutrients that would help, or the type of exercise that was required. They never once said that exercise and diet "could" help me.

The proper information, I learned, was never given to me by doctors in any shape or form. All they were interested in was off loading their products. drugs and injections to poison me with Western medicine. The only doctors and pharmacists worth listening to were former doctors and pharmaceutical employees turned-whistle blowers exposing the truth about this Western practice. A pill for every ill. They also discussed how the appropriate diet and nutrition can be highly beneficial for the body instead of drugs.

People need appropriate nutrition and exercises for each individual needs & problems, but unfortunately, doctors are not trained in this field to give any, nor appropriate  nutritional advice.

I was envious of anyone in those electric wheelchairs and wished I had one. That wish would have come true if I had not taken the decision to fight back. At this point, I was now on crutches and was practically begging for a double hip replacement. I was informed that my hips "still had life left in them." It was frustrating, because if I never had A.S. they would have been replaced,  but because I had pain in my whole body, the only treatment they were willing to give me was Etanercept, aka Embrel Anti TNF injections which I refused due to researching the life threatening side effects.

When exercising, Endorphins produced by the central nervous system and the pituitary gland are my body's natural producing pain killing chemicals.

Other side effects include cancers, infections, diseases and weakening of the immune system. I have always hated taking medication, but needed too. I have always known that they were a temporary fix to a long term problem and the drugs would eventually deteriorate my health, damage my body and potentially cause death in the long run......I discovered that painkillers kill more people than heroin and cocaine combined which reinforced my decision to stop taking medication.

A number of people I know  who have multiple and various problems and still take their medications -- practically the same drugs I was on. I told them I've ditched the pills and changed my diet and am feeling better each day, but they all say, "My doctor said I need to take them. I know these people don't exercise because I made a point of asking, nor do they eat healthily from what  I've observed. I think they are expecting time and medications to heal their problems. Sadly, none of them I see are getting any better.

Bottom line: When joints run out of raw materiel's they start to break, too, but it's not the doctor's job to fix it nor is it their job to understand the origin or development of a disease. It's only their job to manage it, so they give pain medication and anti inflammatory drugs until it gets so bad that joint replacement surgery is needed. Helping people have healthy bones and joints is one of the easiest things to do with appropriate appropriate nutrition and weight bearing exercises.

My Post - Be Inspired To Ditch Your Prescriptions -  Exposing the truth about Doctors and the Pharmaceutical companies.


http://theonlywayproductions.blogspot.co.uk/

1. Introduction. How I Have Almost Cured My Ankylosing Spondylitis, Arthritis & Other Joint Injury's.

2. Story / History & All Symptoms. How long I have been suffering for. How it changed my life for the worse, and why I made the decision to fight back.

3. Medical Reports, and results of my X-rays, Ultra sound and MRI scans. 

4. The Beginning Of Exercise Routine - Painful, Progressive & Positive.

4A Detailed Training Program. Dozens of exercise routines, thousands of repetitions for hours each day, and the best places to do them for maximum results.

5. Nutrition Information. Diet and important supplementary products I now take daily. 

6. Testimonials from medical professionals who knew how much pain and stiffness I was in.

http://theonlywayproductions.blogspot.co.uk/

Note. I am not a doctor. Nor am I giving medical advice for anyone to follow. 

Have YOUR say.. What's your story, opinion, problem or questions? What tips can you give?

Towp. The Only Way Productions

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